Comments on: January 28, 2009 http://www.ConstanceOre.com/2009/01/28/january-28-2009/ Reflections on Living at the End of Life - MDS and Leukemia Sat, 09 Oct 2010 13:56:10 -0400 hourly 1 http://wordpress.org/?v=3.0.5 By: dick gale http://www.ConstanceOre.com/2009/01/28/january-28-2009/comment-page-1/#comment-89858 dick gale Mon, 02 Feb 2009 19:47:12 +0000 http://www.connieore.com/?p=912#comment-89858 2/2/09 Hi Connie and all -- Monday Morning Concert Report: Flute & Guitar in Laguna Canyon Yesterday we attended a very pleasant Sunday afternoon concert at the Laguna College of Art and Design, a facility about a mile inland from the town of Laguna Beach, in Laguna Canyon, now with green rocky slopes because of (minimal, I'm afraid) recent rains. We got to hear two Paganini pieces, a solo flute piece by Telemann, a solo guitar adaptation of a well-known Schubert piece, and an interesting Polenc piece. The room is actually an almost windowless flat floor classroom, holding (very full) about 125 people. Two doors at the back remained open (there are no exit signs) during the concert, and one could see the bright afternoon sun reflected against the white doors and feel the cool ocean air coming through the room. A row of stools along the back wall provided upper tier seating. Magical!! You were thought of during the concert, and many other times as well. We imagine that your current round of medical stuff is very difficult and complex, and our thoughts and prayers are with you and those around you(both 4 footed and 2 footed). It's only about six weeks to the Spring Equinox, and hopefully some signs of spring will appear soon where you are (outside of Charles' greenhouse, that is: inside the greenhouse, it may be that it is always summer (maybe around the Summer Solstice!). take care, dick and susan gale 2/2/09
Hi Connie and all –

Monday Morning Concert Report: Flute & Guitar in Laguna Canyon

Yesterday we attended a very pleasant Sunday afternoon concert at the Laguna College of Art and Design, a facility about a mile inland from the town of Laguna Beach, in Laguna Canyon, now with green rocky slopes because of (minimal, I’m afraid) recent rains. We got to hear two Paganini pieces, a solo flute piece by Telemann, a solo guitar adaptation of a well-known Schubert piece, and an interesting Polenc piece. The room is actually an almost windowless flat floor classroom, holding (very full) about 125 people. Two doors at the back remained open (there are no exit signs) during the concert, and one could see the bright afternoon sun reflected against the white doors and feel the cool ocean air coming through the room. A row of stools along the back wall provided upper tier seating. Magical!!

You were thought of during the concert, and many other times as well. We imagine that your current round of medical stuff is very difficult and complex, and our thoughts and prayers are with you and those around you(both 4 footed and 2 footed).

It’s only about six weeks to the Spring Equinox, and hopefully some signs of spring will appear soon where you are (outside of Charles’ greenhouse, that is:
inside the greenhouse, it may be that it is always
summer (maybe around the Summer Solstice!).

take care,

dick and susan gale

]]> By: Phyllis http://www.ConstanceOre.com/2009/01/28/january-28-2009/comment-page-1/#comment-89857 Phyllis Sat, 31 Jan 2009 19:54:53 +0000 http://www.connieore.com/?p=912#comment-89857 Hi Connie, I stumbled across your website and just have to write to tell you not to give up hope. My Dad was diagnosed with AML last March with 83% blasts in his bone marrow. He entered into a clinical trail at the University Hospital of Maryland in Baltimore using the drugs Decitibine and Vorinostat. Just last week, we received the news that his bone marrow test, after the 8th treatment, shows he is in complete remission. He is 78, soon to be a very happy 79 years old this spring. This trial is being conducted around the country, I believe in 8 different hospitals, if you are interested in researching it. Merck Pharmaceuticals has limited the number of people involved but that would not stop me from contacting them and trying to get in. The other two people that I am aware of, in the same trial, have also gone into remission. One after only two treatments. If you have any questions, please email me and I'll be happy to discuss our story with you. Many blessing to you and yours, Phyllis Hi Connie,

I stumbled across your website and just have to write to tell you not to give up hope.

My Dad was diagnosed with AML last March with 83% blasts in his bone marrow. He entered into a clinical trail at the University Hospital of Maryland in Baltimore using the drugs Decitibine and Vorinostat. Just last week, we received the news that his bone marrow test, after the 8th treatment, shows he is in complete remission. He is 78, soon to be a very happy 79 years old this spring.

This trial is being conducted around the country, I believe in 8 different hospitals, if you are interested in researching it. Merck Pharmaceuticals has limited the number of people involved but that would not stop me from contacting them and trying to get in. The other two people that I am aware of, in the same trial, have also gone into remission. One after only two treatments.

If you have any questions, please email me and I’ll be happy to discuss our story with you.

Many blessing to you and yours,
Phyllis

]]> By: Jerry Pfabe http://www.ConstanceOre.com/2009/01/28/january-28-2009/comment-page-1/#comment-89856 Jerry Pfabe Sat, 31 Jan 2009 19:25:39 +0000 http://www.connieore.com/?p=912#comment-89856 Connie, I hope the transfusions will help you. You continue to face your illness with incredible spirit, courage, eloquence, and amazing humor. You are a remarkable model for all of us. May you have good days ahead. Peace Jerry Connie, I hope the transfusions will help you. You continue to face your illness with incredible spirit, courage, eloquence, and amazing humor. You are a remarkable model for all of us. May you have good days ahead.

Peace
Jerry

]]> By: Becky Pfabe http://www.ConstanceOre.com/2009/01/28/january-28-2009/comment-page-1/#comment-89854 Becky Pfabe Thu, 29 Jan 2009 04:51:04 +0000 http://www.connieore.com/?p=912#comment-89854 Dear Connie, Oh, how I have memories of watering your orchids when you were on vacation! They'd have to be carried to the bathtub, watered, left to drain for a bit, and put back in their place. And I will always think of you when I give blood every 8 weeks! Enjoy the energy you should get after 2 units. Becky Dear Connie, Oh, how I have memories of watering your orchids when you were on vacation! They’d have to be carried to the bathtub, watered, left to drain for a bit, and put back in their place. And I will always think of you when I give blood every 8 weeks! Enjoy the energy you should get after 2 units.
Becky

]]> By: irene Beethe http://www.ConstanceOre.com/2009/01/28/january-28-2009/comment-page-1/#comment-89853 irene Beethe Thu, 29 Jan 2009 01:56:30 +0000 http://www.connieore.com/?p=912#comment-89853 Dear Connie, How wonderful to have the beauty of spring and summer in this wintry time. What a special gift Charles shares with you and you with us! Once again, you are at the point when hope helps motivate you on to whatever the future holds. (And we know who holds the future, our loving, heavenly Father.!) With love and hugs from Michigan, Irene Dear Connie,

How wonderful to have the beauty of spring and summer in this wintry time. What a special gift Charles shares with you and you with us!

Once again, you are at the point when hope helps motivate you on to whatever the future holds. (And we know who holds the future, our loving, heavenly Father.!)

With love and hugs from Michigan,
Irene

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